So Much So Fast
So Much So Fast is a documentary by Steven Ascher and Jeanne Jordan. This film premiered in competition at the 2006 Sundance Film Festival, and won the Audience Award at the Boston Independent Film Festival.
Plot summary
So Much So Fast documents 5 years in the life of Stephen Heywood who, at 29, discovers he had the paralyzing neural disorder Amyotrophic lateral sclerosis (Lou Gehrig’s disease).
Determined to live normally, Stephen gets married, has a son and rebuilds two houses. His and his wife Wendy’s observations of the world and his disease explore the fragility of life.
The film also tracks his family's response to the drug companies that ignore his disease because there is not enough profit in curing it and his brother's creation of a multi-million dollar ALS research facility to find a cure for Stephen's disease in time.
Trivia
When asked what he would do differently in the five years since his ALS diagnosis, Stephen Heywood replied, “Have more sex on film.”
The filmmakers were inducted into the world of ALS when a featured family member in their film Troublesome Creek came down with the disease.