Consent management
Consent management is a system, process or set of policies for allowing consumers to determine information they are willing to permit their various providers to access. This allows individuals to control their own information privacy and how that information is collected and used, often within the context of digital platforms and data privacy regulations.[1]
It was originally related specifically to health care but has expanded to include consent about all electronic information about individuals that include what data is collected, how it is used and provide them the ability to manage their consent choices.[2]
History
[edit]Originally consent management was related to health care as medical records started to become stored and shared electronically. It was to enable patients and consumers to affirm their participation in e-health initiatives and to establish consent directives to determine who will have access to their protected health information (PHI), for what purpose and under what circumstances.
After GDPR was established in Europe after 2016, consent management become a more widely used and started to include managing of private information and their access by any provider (like online advertisers). Consent management should supports the dynamic creation, management and enforcement of consumer, organizational and jurisdictional privacy policies.
Standards
[edit]The need to accommodate and automate consumer privacy preferences in health information exchange was recognized by the healthcare industry through various standards activities and consent discussions:
- American Medical Informatics Association (AMIA)[3]
- Canada Health Infoway[4]
- Information Security and Privacy Collaboration[5]
- Health information technology Standards Panel (HITSP)[6]
- Health Level 7[7]
- Basic Patient Privacy Consents (Integrating the Healthcare Enterprise)[8]
- Advanced Patient Privacy Consents (Integrating the Healthcare Enterprise)[9]
- Organization for the Advancement of Structured Information Standards (OASIS)[10]
- Interactive Advertising Bureau (IAB) Europe: List of Consent Management Provider[11]
References
[edit]- ^ "Most Websites Get Consent Management Wrong—Is Yours One Of Them?". Forbes. November 22, 2024.
- ^ Anderson, Max (May 13, 2025). "The ins and outs of consent management platforms". Ketch.
- ^ Coiera, Enrico; Clarke, Roger (2004). "e-Consent: The Design and Implementation of Consumer Consent Mechanisms in an Electronic Environment". American Medical Informatics Association. Archived from the original on September 8, 2017.
- ^ "iEHR Tech II Project - Standards Collaborative Partnership" (PDF). Canada Health Infoway. October 20, 2008. Archived from the original (PDF) on July 6, 2011.
- ^ "Health Information Security and Privacy Collaboration (HISPC) - Impact Analysis Report". RTI International. December 20, 2007. Archived from the original on February 20, 2009.
- ^ "TP 30 - HITSP Manage Consent Directives Transaction Package". American National Standards Institute. October 15, 2007. Archived from the original on March 24, 2009.
- ^ "Community-based Collaborative Care Project". HL7. March 23, 2009. Archived from the original on May 9, 2009.
- ^ "Basic Patient Privacy Consents (BPPC)". Integrating the Healthcare Enterprise (IHE) wiki. November 19, 2021.
- ^ "Advanced Patient Privacy Consents (APPC)". Integrating the Healthcare Enterprise (IHE) wiki. November 29, 2021.
- ^ "Cross-Enterprise Security and Privacy Authorization (XSPA) Profile of XACML v2.0 for Healthcare Version 1.0". OASIS. November 5, 2008.
- ^ "Transparency & Consent Framework - List of registered CMPs". IAB Europe. 2018. Archived from the original on June 25, 2018.